I am so sorry to hear that. Sorry also that you have this disease! You’re in good company at least. (Lame attempt at humor). Anyway, I was pretty allergic myself. Had strange skin lesions develop all over my body with SCIG. Didn’t take to it very well at all.
What is it you would like to know? SCIG is a subcutaneous version of immuno globulin treatment. Meaning under the skin. 3 days a week I prepare myself a treatment consisting of 4 small needles and insert them in to the fatty part of my abdomen. I start a mechanical pump that takes 2 hours to complete. From what I understand this treatment is off label for the disease. Meaning that you would have to have a pretty sharp neurologist to know that this can treat the disease, but it isn’t one of the medications listed diseases. It’s is being more and more used due to its slow entering of the body with less side effects. Also less expensive being that it doesn’t have to be administered by an oncology department. Also is done by yourself with no refrigeration required. Room temp. Easy to prepare with minimal discomfort.
Please feel free to ask anything you want to know. Once again I am sorry that you have to deal with this. Keep fighting keep pushing the doctors. You can find stability and less pain. Nothing will be perfect, but there are options.