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Living with Polyneuropathy CIDP, GBS, & CMT

Any ideas for pain control?

My doctor prescribed hydrocodone for pain relieve several months ago. The pain is not eliminated but it is made manageable. If the pain gets bad enough walking is difficult and sleeping is almost impossible. I am taking 3 325mg pills a day. If CIDP is here to stay I wonder if the pain med's will always be needed. I am currently getting IVig infusions two days every other week. Does anyone have any suggestions for pain management I want to be active.

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Hve you asked your doc about gabepentin? thats what i take and helps me with the pain. i take 400 mg three tims a day.



MeanDog said:

Hve you asked your doc about gabepentin? thats what i take and helps me with the pain. i take 400 mg three tims a day.

Thank you MeanDog, I did try Gabepentin at the beginning of the treatment, 300mg twice a day. I did not notice improvement so I tried Zyflamend a herbal supplement also not much help. I am thinking of trying gabapentin again, maybe there was too much going on initially to notice pain relieve.

maybe you need a stronger dose of gabepentin. i was on a lower dose but when my pain got worse my doc incresed them. im thinking about seeing if he will give even a higher dose.

nancy said:

Thank you MeanDog, I did try Gabepentin at the beginning of the treatment, 300mg twice a day. I did not notice improvement so I tried Zyflamend a herbal supplement also not much help. I am thinking of trying gabapentin again, maybe there was too much going on initially to notice pain relieve.

Same as you with the pain management. I take four oxy a day and 600 mg of gabapentin 3 times a day.

It doesn’t seem to affect me like it does others with the grogginess and brain fog I can tell it works first thing in the morning but after that I’m just taking it in hopes that it will help, because I’m not sure it really is. I go back to my pain management doctor today so I am looking for what other people are doing but this seems like it’s about it if not more… So I will follow this post to see if anything else is posted. It looks like it has been several years for you. Do you have any updates?

I’ve had CIDP for about 5 years now. I power through the days dealing with the pain so I can work, but take extended release Morphine and Amitriptyline to sleep. Its not that great a sleep, but better than the hour or so I am able to get without these drugs.