Hey, your story gives me hope today. Thanks.
I was 7 when I also reacted to the flu vaccine and was first diagnosed with GBS and then CIDP/CIAP. It’s been extremely difficult, for both me and those around me, especially my parents - but be sure to keep her attitude up, even when things are hard, point out all the little things in life that are worth smiling at. My father is a psychologist, and through everything he has been sure to comfort me when I’m upset but also taught me to pick out the little drop of sunlight on a rainy day, and I’ve not only grown stronger physically since, but also emotionally.
It’s so rare, and I only know so much, so I can’t tell you how much the recovery results vary, but it may be of some comfort for you to know that now, 8 years later, the only thing I lack is being able to pull my foot up, causing me to walk a little funny - but even that is coming back, very slowly, and I can run and dance and all sorts of things. I’ve even started ballet. My prayers go out to you, and although I don’t know how much about my recovery process applies to others with CIDP, I’d be happy to answer any questions you have. (:
(update:) After reading other stories, I realize that CIDP stories actually vary greatly - I feel very lucky to have recovered as well as I have.