I have had GBS for over 1.5 years and my recovery just seems to be so slow! I am walking with a walker and in physical therapy, but my muscles are so tight I can’t get into my new orthotics. And then the therapists said I may never be 100% again. I know I sound whiney and ungrateful, but I just want my life back! I’m tired of taking 10 breaks to put away 1 load of laundry or of my nerves burning so bad i just want to sit and cry. Im exhausting my family with my literal exhaustion, and they have never been interested in listening to me if I need to vent.
I don’t know where else to go, I’m crying everyday I’m so frustrated and feel so alone. I don’t care how much progress I’ve made, I’m exhausted. I just want one thing to be easy.
Thanks for letting me vent, if nothing else.