I am new to the blog environment, but was diagnosed with CIDP winter 2014 after going through every test and two opinions. I am 27 years old, full time medical coder and part-time student working towards my Bachelors. I first noticed symptoms of numbness, tingling, weakness, and fiery pain in both of my arms and hands. I received IVIG after steroids didn't help and it worked within days. I had a relapse five months later and in a matter of days I could barely walk and had to had help with everything including bathing. I instantly got better from the IVIG and I have been on that since. I am regularly receiving treatments every 8 weeks. The hardest thing for me is feeling and looking fine until I get symptoms again, it's a constant struggle with being tired, weak, balance issues and realizing that the disease hasn't gone away. Multiple doctors have said that theres a possibility it could go dormant for years or may never come back but then every time I notice symptoms again, it crushes me. I have had a hard time also because I am so young and most people my age don't have to worry about these things, they don't even have to worry about insurance really which brings me to another difficulty that I have experienced. I am in Virginia and it has been very hard to find insurance options that cover Gamuniex but also have a deductible or coinsurance that I can afford. How is everyone else paying for this expensive treatment? My life is basically on survival mode always and always thinking about how to pay for my insurance and have my treatments covered, I can't live on my own and I can't save either, my life revolves around the medical expenses. Does anyone have any input, anyone that's young and diagnosed with this or have similar symptoms or is there anyone lucky enough to have gone into remission so to speak?