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Living with Polyneuropathy CIDP, GBS, & CMT

Docs in Plano


#1

I have had several doctors in the Plano area and have not been happy with any of them. I was wondering if anyone has a suggestion for a good doc in the Plano/Frisco area. I have CIDP (diagnosed about 4 years ago - but I think I have had it for about 20 years. I had a great doc in Houston, I have been going there once a month for IVIG infusions. My insurance plan changed this year and my payment for each treatment will be $1000, Can;t afford that. Thank you for any suggestions.


#2

Hi, check out Patient and Provider Support Room. Some of the members have had the same problem as you regarding the co-pay of $1000. Perhaps they can make some suggestions. Good luck. I also find it hard to find a Doc who really knows about CIDP and IVIGs.


#3

The Center of Excellence in your area is:

Houston, TX - The University of Texas Health Science Center at Houston (UTHealth)

UT Physicians Neurology Clinic
6410 Fannin
Suite 1014
Houston, TX 66160
www.utneurology.com
Phone: 832-■■■■■■■■ (Adult), 832-■■■■■■■■ (Pediatric)
Fax: 713-■■■■■■■■ (Adult), 713-■■■■■■■■ (Pediatric)

You might also want to contact the GBS/CIDP Foundation International for help.

http://www.gbs-cidp.org/


#4

My doc is in Houston. I did find out that if I go through my Specialty Pharmacy (Acreedo), the cost is $80. A nurse will come to my home. My doc in Houston is willing to write the orders. This might be something that others should look intol

Blue Topaz said:

The Center of Excellence in your area is:

Houston, TX - The University of Texas Health Science Center at Houston (UTHealth)

UT Physicians Neurology Clinic
6410 Fannin
Suite 1014
Houston, TX 66160
www.utneurology.com
Phone: 832-■■■■■■■■ (Adult), 832-■■■■■■■■ (Pediatric)
Fax: 713-■■■■■■■■ (Adult), 713-■■■■■■■■ (Pediatric)


#5



YBridge said:

My doc is in Houston. I did find out that if I go through my Specialty Pharmacy (Acreedo), the cost is $80. A nurse will come to my home. My doc in Houston is willing to write the orders. This might be something that others should look intol

Blue Topaz said:

The Center of Excellence in your area is:

Houston, TX - The University of Texas Health Science Center at Houston (UTHealth)

UT Physicians Neurology Clinic
6410 Fannin
Suite 1014
Houston, TX 66160
www.utneurology.com
Phone: 832-■■■■■■■■ (Adult), 832-■■■■■■■■ (Pediatric)
Fax: 713-■■■■■■■■ (Adult), 713-■■■■■■■■ (Pediatric)


#6



Maddy said: I know for a fact that others do. I'm very happy you found another way to get the IVIGs. What a savings. Good luck to you !!



YBridge said:

My doc is in Houston. I did find out that if I go through my Specialty Pharmacy (Acreedo), the cost is $80. A nurse will come to my home. My doc in Houston is willing to write the orders. This might be something that others should look intol

Blue Topaz said:

The Center of Excellence in your area is:

Houston, TX - The University of Texas Health Science Center at Houston (UTHealth)

UT Physicians Neurology Clinic
6410 Fannin
Suite 1014
Houston, TX 66160
www.utneurology.com
Phone: 832-■■■■■■■■ (Adult), 832-■■■■■■■■ (Pediatric)
Fax: 713-■■■■■■■■ (Adult), 713-■■■■■■■■ (Pediatric)