I was just diagnosed this past week with a deep vein thrombosis in my left calf. Since I have no other risk factors, the vascular surgeon has determined that the cause is most likely the IVIG, since blood clots are one of the common risks of the medication. I did have the infusions for two days back-to-back at the end of June and my left leg swelled up pretty badly. What may have contributed to it was that two days later I had an extended car ride lasting about 5 hours. Since it is hot and humid in NJ this time of year, and I do tend to swell somewhat when I get the infusions due to the liter of fluid they give me with them, I didn't think much of it. The swelling went down somewhat, but then I still had pain in the left ankle and walking was more difficult than usual due to the pain. I went to my PMD who thought I had an ankle sprain, but decided to order a doppler of my lower extremities because she felt it was about time we checked the circulatory status of my lower limbs. Thank goodness she did or I would not have found out about this clot. My left leg is the one I call my "dead leg" since it feels heavy from the knee down and always feels like I have a too tight ACE bandage wrapped around it. I really didn't notice much difference in it except for the ankle pain and swelling.
When I went to the vascular surgeon today he did another doppler and said he is going to watch the clot by doing a series of dopplers over the next couple of weeks. I'm also taking one regular strength aspirin a day. He said there is minimal risk that this type of DVT in the lower part of the calf will migrate upwards to obstruct the veins up into the upper leg and groin or will break free and become a pulmonary embolis. I am grateful that the clot did not develop higher up the leg or the situation could have been much worse.
Has anyone else had a similar experience?