Ok I just joined the forum. I have been reading through lots of different memebers stories. So after reading through lots and lots of them. l am wondering about my diagnosis. The reason is because I was said to have had a "Mild GBS or one of it variants on the sensory nerves".
Ok so in a nut shell I had a sinus infection that led to an URI. This was over a coarse of about three weeks. Two weeks into the sinus infection I started to see my middle finger twitch(RT Hand). That lasted about a day(not very often). The next day it was in my index finger same hand. I was joking with my wife that I had Parkinsons(which I know is not funny). Well that lasted about a day then it switched to my other hand. On my left hand it was just my index finger that twitched(not very often). My forearms felt like they wanted to cramp also.
That all stopped then one night while I was at work both feet and hands started to feel like they were going to sleep. The next day it felt as if it was going up my arms and legs. It stopped there. But then over the next couple of days I had tingling all over body. At this point I went in to my GP thinking I hurt my back or something. This was on a Friday. By Monday I was back at work. Then I started to feel the right side of my face go numb. It was weird. It stared at the top and worked its way down over the course of a few hours. I went to our medical department here at work thinking I was having a stroke. They sent me to the ER.
Like everyone else at the ER they did all the normal test. I had of course been online myself trying to figure out what was going on with me. All test at the ER came back negative. By this point my symptoms seemed to have stopped. I suggested GSB to the doctors but they just said I would not be able to walk if that was it. Then was sent home.
I happened to have a friend I work with who his wife works at a Neurologist office. She got me in the next morning(very luck there). He did every test they can do. Not all in the same day. Went to an MRI with and without contrast. That gave me a horrible headache. The final test was a week later and was the spinnal tap.
The only thing that came back bad was my Vitamin D. So his offical diagnosis was Mild GSB or one of its variants. After reading different stories from folks on here mine was not even mild. Maybe just a touch.
After the first symptoms went away both of my calves started to have small twitches in them. Which I got right online and ALS came up! After a day I started to feel the twitches all over my body, but mainly in my calves. Now it seems like lots of others the tingling comes and goes. But my legs just feel weaker. I feel tired everyday. No energy. I get pain in calves that comes and goes. Now for some folks on here who had paralysis I am so sorry. I am just sharing my story because most of the stories I am reading are about people who had horrible cases of GBS. Wanting to see if anyone else out there had a similar story as mine.