Ben’s Friends is very pleased to partner with Backpack Health to provide a custom, personal and private medical data management app to its patient-members and their caregivers.
Members of select Ben’s Friends patient communities can now take advantage of a personalized state-of-the-art technology that will enable them to manage their medical information in a secure, multilingual, portable and easily-shareable digital tool. In an out-of-country emergency situation, medical personnel will be able to instantly translate the medical information that the member has decided to share.
This portable app will also give members access to an online referral service for physicians and clinics, and allow them to participate with complete anonymity in research that will benefit the larger rare disease community.
To join just go here You may want to view the videos below first