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Living with Polyneuropathy CIDP, GBS, & CMT

Guillain-Barre & CIDP Honor's reserch paper

#1

Honors CIDP Research Paper, The one I love PDF.pdf (1.0 MB)
Hello everyone, I wanted to share my honor’s research paper on the topic of GBS and CIDP, from a mother’s perspective of her child’s experience. I changed my son’s name to a girl’s name for the project, but the encounters are real. Please feel free to contact me if you want to talk or ask us any questions. God bless each and every one of you, thank you for being a source of support for me and my family throughout the years.

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#2

God bless you. So thankful your son is better. How wonderful.
I have been diagnosed with CIDP for a year now. The falling down and not being able to walk was obviously very scary, but I have been on IVIG for 9 months, and have improved tremendously. I look back and think, I am so glad to be here and still working. I am 60 years old, and love my job and now I teach Sunday school. Praise God.

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#3

Thank you Snuffywife, I love your name. I am so sorry to hear what you are going through but I want you to know that you are not alone. I am so glad to hear you are doing so well. This is a scary condition, but manageable with support and strong faith. I am praying for you. God bless you and I hope you had a peaceful Easter today. Sincerely, LB7

#4

I was diagnosed with GBS and then later to CIDP over 42 years ago. That was certainly a challenging time however 4 1/2 years ago I was diagnosed with Myasthenia Gravis. By far that one has taken a toll on me. Through it all, I give God the praise and honor as I lean on Him each day. It is my faith that gets me through each day.

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#5

Thank you Lightbulb7seven for sharing your personal experience, family experience and that of your child.
I was diagnosed directly with CIDP some five years ago and have already enjoyed a fulfilling life. Now I take great joy in my grandchildren.
It is pleasing to read your child is in remission, something that eludes me at present.
Yet these ‘trials’ have only served to cause me to draw closer to God. God is not the one who causes these afflictions to beset us, God is the One who supports and holds us through the ‘dark nights of the soul’.

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#6

Thank you everyone, your messages are uplifting and encouraging to my family and I. I realize what a blessing our son’s recovery has been, and cherish the miracle that has been bestowed upon us; but we will never forget what we went through and the people who made our lives bearable and gave us hope. You guys are the shining lights in the world, radiating endurance and strength for the darkest days. I am truly grateful for this community and for each person who is quietly and ferociously battling with neuropathies and disability that they did not ask for nor deserve. I pray for each one of us to be comforted, encouraged, and supported through the hardest days and celebrated in times of victory.

ForHim, I have been learning about Myasthenia Gravis in my nursing program and I must say that you are a very strong person to go through all of the pain and hardship and still to have the joy inside of you to spread to people like my family and I. 42 years is a long time to carry a cross, but you know that we are not alone in our burdens, HE really does carry us and gets us farther that we ever could by ourselves.

Jokhere, I am so glad your grandchildren have brought you so much joy. I look forward to my turn as a Grandparent someday with eager anticipation. The Lord is surely merciful to His children and never leaves us alone, but gives us hope in the darkest of watches. I am praying for everyone’s journey to be alleviated with peace and strength for the remaining journey. God bless you all. Sincerely, LB7