Hi all, ive got CMT2 and bad restless legs. We talked abkut those thing.
My hands are gettong more clumbsy, my apologies.
Starting a couple months ago i started getting what im gonna call the heebie jeebies. Its like restless legs through my whole upper body, and nothing makes it stop. With RLS you feel the crawlies and move your legs and it goes away for a while.
This is while im wide awake walking, sitting, being active, it doesnt matter it just comes on, first time for an hour or so, last attack was more like 9 hours, kept me up throigh the night, despite being on gaba and taking sleeping pills.
Does this sound familiar to anyone? Please let me know if you’ve experienced anything like this.
I just had my low back mri taken and next week im going in to get a genetic test done. My neurologist has decided to do a deep dive into my condition, and this was before these new very intense sensations.
Thanks for reading, and hopefully someone can point me in some direction.