We are so glad you joined us! You have a valid question on having children when you have a genetic disorder like CMT.
The odds are 50/50 chance EACH child can have CMT or can be a carrier of it to their offspring. So, it is a heavy responsibility to carry in deciding to have children. And then, there are affects, for yourself, as childbirth is adequately labeled "Labor". So, it can affect progression during pregnancy, childbearing and postpartum.
Raising a child for any "normal" woman, is a 24/7 task and going for 18 + yrs. I have three children, ages 37, 23, and 21. Now, have 4 grandchildren, ages 18, 6 (twin boys), and 2. If I had known of my CMT when I was planning children, I probably would have decided not to have them, knowing the risks for them. But, I can tell you now, I'm so thankful I did not know then and it was not my decision to make.
Of my children, my two younger children, one has been diagnosed, the other tested twice and came out inconclusive. My older daughter must have been a carrier, b/c my oldest granddaughter, age 18, shows signs and she feels certain she has it. She was tested but her mother never followed up on getting results. (She doesn't want to know) Since, her mother divorced and estranged from the man, who was in the Air Force, and they are the ones who had her tested. So, not sure if she could get them now or not.
I was 40 years old before my diagnosis, and all along knew something was "different" about me; In my 30's, something was definitely causing me more pain, stress and trouble in function but, still doctors would excuse it or explain away my symptoms or label them something else.
I had already had my first child at the age of 21. Really no difficulty in childbirth, and actually felt healthier then than ever in my whole life. I chose to eat better, and exercise on a stationary bicycle my whole pregnancy b/c I was determined to have a healthy child. So, I had prepared my body (not knowing I had CMT) The other two children, did affect me but I was age 35 and then aged 37 when they were born.
Let me just state my original plan was to be a school teacher so I could have lots of children and enjoy them even though not my own. Did not plan to marry, so I could focus totally on children. So, children were what I was and still am about. Point being, I was devoted totally to children, and committed. It is a huge commitment, even for "normal" people. No one can tell you if you need or want the commitment. You must decide and way the pleasures vs. the difficulties.
I'm so happy (even with the difficulties) to have my children and now my grandchildren. They enrich our lives so very much daily! I'm glad I did not cheat myself out of this rewarding experience. But, everyone is different and has to make their own choices for their journey in life.
There is no reason why your CMT should stop you from having children, but do consider the risks and decide if you can commit to coping with your CMT and possibly the CMT of your children. Life is a risk,"a box of chocolates" and we "never know what we're gonna get", but we can make better choices for our given circumstances when we know some of the facts up front .
I hope I've given you food for thought and wish you well in the decision. I'm here as your friend and happy to chat in person via chat. Email me personally if you want to chat further.