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Living with Polyneuropathy CIDP, GBS, & CMT

It's been a rough night, I cant sleep


#1

My anxiety level is on overdrive and I feel like I can’t breathe. I’m having a hard time swallowing. Has anyone else have had this problem, I’m exhausted, please advise. I’m driving my husband crazy.


#2

I’m not on anxiety pills at the moment but let’s see what they give me today. I wound up in the ER early this morning because I got worse last night. I’m physically, mentally and emotionally exhausted.


#3

I have to see another doctor for that


#4

Wow, you are describing my patient, I do massage on his hands and feet. Have you been effected on movement in your extremities? B. B. as I will call him went through the exhaustion and breathing issue. That problem seems to be getting a bit better. Are you able to use your arms, hands, feet, ect? Just hang in there I think that is will get better for you. Hope you get well real soon.


#5

Im doing pretty well moving around on my own, I have use of all my extremities, just weak. Some days are better than others. I’m just hurting so bad, I feel like I’m being electrocuted slowly all day and all night,



myrna said:

Wow, you are describing my patient, I do massage on his hands and feet. Have you been effected on movement in your extremities? B. B. as I will call him went through the exhaustion and breathing issue. That problem seems to be getting a bit better. Are you able to use your arms, hands, feet, ect? Just hang in there I think that is will get better for you. Hope you get well real soon.


#6



Ivy said:

Im doing pretty well moving around on my own, I have use of all my extremities, just weak. Some days are better than others. I'm just hurting so bad, I feel like I'm being electrocuted slowly all day and all night,

myrna said:

Wow, you are describing my patient, I do massage on his hands and feet. Have you been effected on movement in your extremities? B. B. as I will call him went through the exhaustion and breathing issue. That problem seems to be getting a bit better. Are you able to use your arms, hands, feet, ect? Just hang in there I think that is will get better for you. Hope you get well real soon.

Ivy, have you had some movement, from the beginning, in your hands and feet? I am so concerned about this man, however we did get action in all ten fingers yesterday. I am so hoping that something will trigger the movement in his extremities. Sounds like you are doing pretty well. Hope your get 100% of all you want. Hang in there. It is different for me to be on the outside looking in, so I really appreciate your input. Thank you so much. Ivy have you used essential oils to try and help with sleep. My patient found that peppermint oil and lavendar, are very helpful.


#7

Have a great day.


#8

Thank you, it’s been a rough one but I’m greatful that I can walk


#9

Hi Ivy my name is koi girl. I have severe anxiety too. When I was in the hospital I felt like I couldnt breathe . I’m no doctor, but I feel like the more you focus on your swallowing the worse it might get. Stop for a second, and breathe. I am by no means saying your worries are not real, all I’m saying is that sometimes when you get up in your own head, you can feel worse. Remember that when trying to relax, it can take awhile. I’m on clonazepam, which really helps me. Like Mdolich said, medication can really help. Anxiety sucks, but you can beat it. My dad has severe anxiety, and he does the clock method. Look at your watch or clock right now. wait 5 minutes then check again. See? You’re still okay. Sometimes we can get stuck in our own head, and get in a negative feed back loop. Anytime you need to talk, I am here. I hope I helped.


#10

I just saw your response about you not being on anti anxiety meds. I’m glad you can move your arms and legs. The weakness will get better, it just takes time.