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Living with Polyneuropathy CIDP, GBS, & CMT

IVIG and will it relieve CIDP symptoms


#21

Jeanne, I am not clearly diagnosed yet, I have sensory damage throughout my body so burning, stabbing etc. It’s confirmed as smallnfibre nerve damage. I also have muscle atrophy. I have just had a 5 day infusion of methprednisone. During that 5 days i felt great and pain reduced alot. A day after finishing the nerve pain is awful. Did you have iv pred and did it help the pain? Its so confusing as to what I should try to manage this. I have an autoimmune arthritis so believe this is an autoimmune neuropathy even if not cidp


#22

Sorry I haven’t been on the site for awhile. I haven’t done IV prednisone. I am now doing 2 days of IVIG every 4-6 weeks. I have taken several short term oral prednisone when I’ve had burning in my hands which seems to help. I hope you are doing better and have found a drug combo that helps, or that you are seeking another opinion to get a firm diagnosis.


#23

So how are you now?