Good Day! (Hope we have)
I had searched online/sites as much I can… as CIDP is “rare” seems the answer to questions (mostly diagnose with it don’t like to ask) is so rare as well.
Life Span? Life Expectancy? of like me diagnose with CIDP. How long is the suffering?
I know my life’s been swell I’ve been treated well
For ones I just want to be brave.
It is not to scare my self my love ones or either every one here. I understand how sensitive this topic is. With all this torture suffering and pains physically and emotionally. Somehow I am up to expect something.
I am anxious and envious of people with CIDP living up to their dreams, with a life or evens so most importantly with people around them who “gets it” who does not judge who does not question or even see you “fine” and thinks that if you stays home thinks I am stubborn or useless! It hurts more how I feel being like a burden to my family…
Perhaps it coms difficult too when financial problem drown you too… some how everything is pointless… pointless… endless questions… endless pains… endless reason to live. But never worry not brave enough tortured pain every days fear me mask the bravery to do so.
That all may sums up the feeling to ask how long… How long!!! Why me… Why us…