Hi, I’m a new member that is struggling to understand my current condition and looking for guidance in this new journey that is in front of me.
I recently went thru a life changing episode that started with something as simple as widespread muscle cramps and an unwell feeling in the morning that quickly escalated into a feeling that that we better get to the hospital soon. By the time we arrived at the ER 15 min later I was barely able to walk and they rushed me into evaluation room a couple minutes later and I could barely sit up in a chair. They took me in a wheelchair to to an ER room and then I could barely crawl into the hospital bed. Then they pulled some blood work and and by the time they asked me for a urine sample I was barely able to lift my arm to pickup the urinal.
By that time all of my muscles had started shacking in what I can only relate to something similar to a seizure. By the time the seize stuff slowed down I noticed that I couldn’t move my legs and I could barely lift my arms off the bed.
That progressed until I could barely open my eyes and my speech and breathing took great effort and the ER doctor gave me a high dose shot of prednisone that finally stopped the progression.
A couple hours later I started feeling pins & needles in my feet and then eventually I was able to move my feet slightly and eventually regained full movement a couple hours later.
When I was well enough to do some tests, the ER doc sent me thru a 2-3 hour MRI of my entire spine and said he suspected GBS. But the tests came back “Normal” and by the time I had recovered enough to walk around that night at the ER they decided to send me home with an unknown paralysis and general weakness diagnosis.
The episode really freaked me out and I’m wondering if the suspected GBS possibility is something I should reasonably pursue and also if the onset and remission timeline in my situation would fit within the scope of a GBS or CIDP episode?
I found a Polyneuropathy specialist in the next closest city but I didn’t wan’t to waste their time if this doesn’t seem to fit within the criteria.
Just for some background info to consider… I’m a 40 yr old male with two C-Spine fusions over the last 10 years and have currently been recommended for a fully hip replacement for both hips but otherwise I’m described as the football player type?