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Living with Polyneuropathy CIDP, GBS, & CMT

Not sure if CIDP

#1

I was dx’d with CIDP in 2010. Abnormal spinal, EMG, and blood work also showed Mgus. Yes I’m blessed :grin:. Two bone marrow biopsies both normal, the last spinal was almost normal and my neuropathy feels somewhat better.
The Mgus is now advancing upwards towards cancer levels, about halfway there (I’m 55) and a second protein is climbing as well and about to climb into the abnormal range. (Making me doubly blessed). I have to get blood work done every 6 months with the oncologist. I have no idea where I fit in any more.

#2

Hello bteeter. These chronic conditions all ‘seem to have a mind of their own’. I note that you’re not sure where you fit anymore. Personally I’d stick with CIDP until the specialists can come up with something else. :grin: