Yeah it drives my husband crazy!! I had just tonight sitting on our couch my left foot started vibrating....
My doctors don't know why, think it's in my head, likw ao many of my things that go wrong with my body.
I think they just don't know or understand....I know for a fact that the ER I was in last week didn't even under polyneuropathy...and didn't understand. YOU know when they don't know.
Anyway I simfied but I try not to argue with the doctors, on the other hand my husband argues, and I am afaird to.I feel the doctor or nurses will do like they might do at a restuant when you send back food etc. So i try not to tell them everything yes I minized my problem.
I also have a hand thing that I wave but I do think that is just nerves being nervous. But with some of the other things no way. I guess i just have to wait and see if there is another diease they just haven't fig out yet.
Hey when I ask any of the doctors I go to all the time about the IVG thing you all have, they have no idea what Im talking about too? See we are in the dark ages here really. My husband wants me to copy some of the post concerning this....and show it to the doctors....and say, "See they get this" why not me?
And also they never did a spinal tap on me or even suggested one. I only had the EMG's
while I know this isn't probably the right section to talk about on......just saw Barrow's Neuro Hospital /MDA clicnic two days back....they couldn't fig out something I'll write not on your post to tell what they said...it is enlighting how little they do know.
so don't give up.....please