Hello all. I'm new to this forum having just received a CIDP diagnosis a few months ago. I've been dealing with symptoms for a number of years, but wanted to touch base with people who are more knowledgeable than me about what I am experiencing.
My initial symptoms started in my feet with them feeling hot and tired probably 4 years ago, but I just chalked that up to getting older. This has now turned in to my skin being very sore (even between my toes), feet burning all the time and feeling like I have a bruise under the balls of both feet 24/7. I'm at the point now that I sleep with my feet out from under any covers as the sheets hurt my toes when they touch.
Next came pain in my shoulders. This felt like I had torn my rotator cuff or some other muscle.
Next was the fatigue and squeezing in my thighs and a pain in my right arm between the shoulder and elbow.
Then some back and hand pain.
And somewhere in here I started having short-term memory issues, focus problems which I call brain fog and days where I'm just dizzy. Because of this, most days I don't feel safe with my driving and my wife takes me to and from work.
I've had my first pulse steroid therapy session which made me feel better for about 3 days, but side-effects from the steroids (stomach issues, fatigue, dizziness and increase short-term memory and focus issues) seem worse that the pain it was to be helping. Especially with such a short beneficial period -3 days.
So now to my question, do these symptoms seem normal to those with more experience? I know each case is different, but I'm really just touching base to confirm that what I'm seeing is not out of the ordinary.