I was diagnosed with Guillian-Barre March 17, 2015. I almost died. They called my family in to say their good-byes. I was in ICU for 2 1/2 weeks. My systolic blood pressure bounced around from 300 to 70. I was on a respirator, partially paralyzed, and mostly non-responsive. By the grace of God I survived. I was released from a rehabilitation center on May 1, 2015. The syndrome is much worse than medical journals give it credit for.
Anyway, the reason I'm creating this thread is to inquire about pain medications. I went off of everything except for Gabapentin about 2 months after my release. I am taking 600mg 4 times a day. However, now my tingling, burning pain seems to be getting worse especially in my hands and feet. I read some old posts about this problem, but I was wondering if anyone is currently having the same problem. If so, what medications or treatments help ease the pain?
I don't understand why it seemed to be getting much better and all of a sudden now it is worse. I had even considered getting off the Gabapentin. Now I can barely function because of the pain.
I appreciate your recommendations.