In 2015 I shattered my pelvis and sacrum and had surgery to implant multiple huge screws and rods into my bones. As I was sruggling to regain some strength and mobility, I developed CIDP. By the time I was diagnosed (doctors kept insisting my problems were all fracture and surgery related and what I needed was more exercise), I had lost 80% of the nerve function in my legs and was using a wheelchair. I’ve been on IVIG since March 2017 (took two months after diagnosis to get insurance approval). I have been slowly gaining weight all this time, and although I am just moderately overweight I know it affects my general health and adds to my CIDP fatigue and constant back pain.
Have you found any way to keep your weight down when you can’t get much exercise? I can barely walk around the house with a cane or rollater, much less take brisk walks around the block. (One doctor actually suggested I do that. I wanted to crack her skull with my cane.) Do you starve yourself, try to exercise, or just let it go?