17 month old baby with PCB variant. Anyone else had?

Thanks for letting me join your group. My 17 month old baby has contracted what the doctors think is the PCB variant or pharyngeal cervical brachial. Her neck, swallow, and right arm have been affected. We are three weeks into the prognosis and her neck is getting a bit stronger, her arm is a little but better but she won’t swallow and is still being fed by a tube. It seems to be a very odd variant as the tests show she doesn’t have a particular protein that would be expected but follows all other traits of gsb. Does anyone know or have any similar symptoms? Also wanted to know about recovery? Any help would be great?