First - thanks for the warm welcome. It's truly wonderful to have a resource like this forum.
Because I've not received any comment from forum folks specific to Alpha Lipoic Acid (ALA) nor seen any recent forum discussions on same, I'm repeating my original request for information, to wit:
Three weeks ago I received a diagnosis of possible CIDP from my neurologist. He has been investigating (via EMG and NCS testing) the cause of the growing neuropathy in both of my feet. It has been advancing since I underwent successful chemotherapy for breast cancer in 2010. His first diagnosis was serious axonal nerve damage in both feet. After a further look at the test results, he felt there was a strong possibility that we are dealing with CIDP. -- which of course, I had never heard of.
I had already begun taking 100 mg of ALA the previous week in the hope of some relief, and my early results have been very encouraging -- diminished stiffness and some increased feeling in both feet.
After hearing the possible CIDP diagnosis I undertook further internet research and discovered a recently completed double blind study re the effectiveness of ALA in treating CIDP. This 16-week study was conducted by a doctor at the Oregon Health and Science University and was completed last fall.
I am now patterning my ALA intake after the dosage used in that study: 600 mg a day, which I break up into 200 mg with each of three meals. This continues for four weeks, then increases to 1200 mg a day for 12 weeks -- which may be more than my stomach/body can take.
The initial good results from ALA have continued -- my feet feel much better, although my right leg has developed some aches which have me concerned. Curious that that the feet are improving and the previously unaffected leg is becoming a bit of a problem. Does re-growing the myelin sheath hurt?
I'll probably go with the spinal tap soon to either confirm or reject the CIDP diagnosis.
In the meantime, has anyone else used ALA to treat their CIDP? If so, was it successful? To what degree? Unsuccessful? I'd really like some feedback.
I also sent an email to UHSU re the results of their study but have received no answer.
Any and all information anyone can send re the use of Alpha Lipoic Acid for CIDP would be most welcome.
And just in case you wonder, I just received another "You still are cancer-free!" from my oncologist -- hoorah!
Thanks in advance.