Bickerstaff Brainstem Encephalitis

I had BBE in 2016. I want to find amyone who had it so I can know their course of symptoms and recovery. Initially I was told GBS with Miller Fisher but now I was told it was BBE. I had axonal and autonomic issues. I have mild muscle twitches now and my facial numbness from the cranial damage has just started to improve 15 months later. I didnt receive treatment except steroids initially. I hope every one is improving and wishing you all the best. Many blessings.