We encourage you to recommend any book you loved reading. If you have one, kindly indicate the name of the book, author or maybe write a brief description about the book through the comments of this post. If you can add the link about the book, that would also be cool!
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Ben's Friends Recommendation:
We're In This Together: Stories & Tips from Patients with Rare Diseases
This book is a compilation of patient tips and stories to help others patients and loved ones get through this difficult time in life. Ben’s Friends is a “little Internet miracle” and we plan on continuing for many more years.
To help others locate the ebook easier, don't forget to give the ebook a 5-star rate review in Amazon. Strong positive review like 5-star bumps up the ebook in Google search results. Thanks!
Hi, our very first Ben's Friends ebook We're In This Together: Stories & Tips from Patients with Rare ... is now available at Amazon. If you got a minute today, kindly give a positive review to the book on Amazon to make it easier for other patients to find it.
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I was given a book by an RN that was assisting me in the hospital in 1985 when i came down with GBS. The name of the book is " Sifted Gold" by Yvonne Wilson. That book was a helpful aid during my recovery.
My parents gave me a copy of "No Laughing Matter" by Joseph Heller & Speed Vogel. He's the author of "Catch-22," and was diagnosed with GBS in the early 80's. It's a pretty interesting read because the perspective changes from chapter to chapter, one is written from Joseph's perspective and the next is written from Speed's perspective. And there's a lot I that I think only someone who has had this crazy disorder can relate to in one way or another. I'm not sure if there is an e-book version of this, I tried looking for one and could not find it. It's also interesting to see how this disorder was handled back then, if someone was diagnosed with it they just sort of let it run its course, there's no mention of treatments like IVIG or plasmapheresis or even steroids.