I will be having surgery soon & I remember reading something here about precautions that were needed as far as being put under if one has CMT. I can't find the post, but know it had something to do w/CMT affecting the diaphragm..... Thanks!
I don't know where the post is but I do know that I make sure that I am not given HALOTHANE OR SUCCYNACHOLINE(sp?) These can be deadly. I was this told by a doctor many years ago. I have CMT1A. When I have surgery I am more concerned with being put to sleep than the surgery.
I am not sure what the precautions are but my orthopedic surgeon required me to have a complete heart check up. He made sure the anesthetist was aware. I have had difficulty waking after anesthesia if they use too much medicine. When I had my nerve block last year for my shoulder surgery I didn’t take a deep enough breath before it took hold. Felt like an elephant on my chest for several days. Good luck to you.
Yes, there are definite concerns. CMT muscles and nerves are affected all over the body though it starts in the distal nerves first and progresses. My diaphram is getting weaker and I have situational asthma where air way will close and not enough air in diaphragm to open so have to be cautious and know what to do in these situations. Heart muscle is the largest muscle so definitely can be affected and the heart affects many things. Caution and making the medical profession very aware for your benefit as well as theirs. Know your body and how it affects you and be your own advocate.
Wishing you well and good outcome!
All of the suggestions made here are good ones Make sure that the surgeon knows, but also make sure to tell the screening nurse who will speak to you a few days prior to surgery. It is her job to suss that sort of stuff out, contact the anesthesia team's office and discuss a plan for you. I would be more concerned with sedation than full general anesthesia. With general, you'll be intubated and a machine will breathe for you. The team will keep you tubed until you begin to do that work yourelf. The PACU staff is also highly trained and you will have a nurse by your bedside constantly until you are easiy arousable, and stable.
the most improtant thing for yout o do, is to tell every single person you come in contact with related tot his surgery that you have this condition. Even if you feel like a broken record, keep on going. Remember that offtentimes, these people are in a hurry. Make sure they hear you.