So so sorry to hear you are having such a difficult time these days. Your comments seem to reflect your frustration with whatever Chronic Pain Treatment regimen you have been directed to follow that doesn’t appear to be helping or working for you. Most unfortunately, is sounds as if you may also have a problem with Depression as well.
I strongly encourage you to consider doing 2 things ASAP:
a) Contact your primary MD or whoever is prescribing whatever Pain meds you are
taking to request a referral/name of a Pain Mgmt and a licensed Mental Health
It is clear from your comments that you need to seek Help Now as your current
treatment plan is Not Working for you.
CIDP is a Chronic condition that can be a challenge to treat and even harder at
times to live with.
Believe me when I say this particular site has people, me included, who
understand what it is like having to live with a chronic incurable condition medical
science isn't yet able to "fix" or correct.
It CAN be Better Managed though.
Talking things out with a professional, an unbiased listener who can help you better
deal with the Depression/Frustration you are experiencing would be an Excellent
step to take at present. That and informing whoever is directing your CIDP
Medically right now would be really Beneficial.
b) If you have a Pain Mgmt MD directing your treatment right
now and assuming you have already identified the degree of ineffectiveness the
med regimen you’ve been directed to follow isn’t working all that great for you
it is time for you to obtain another Pain Management opinion ASAP as how to
obtain a better handle on the pain you do have.
If you are not seeing a Pain Mgmt specialist who is directing your care, ask your
MD for the names of a few of them, look them up online and see if they are
located anywhere near where you live.
If in fact there are none available anywhere within reasonable driving distance from
where you live, do an Online to search for a Pain Management specialist that is
associated with the nearest University level Teaching Hospital where you live.
Make an appt and go to be seen.
Sadly, there is no magic “cure” for CIDP. I have had CIDP for almost 9 yrs now and I agree that it is a challenge to live with. CIDP causes pain on a physical and emotional level which is something other folks, me included, well understand. That is NOT to say there are no other approaches that can help make things more bearable for you.
If you have access to a heated/ Indoor pool, get into the water. Warmth and water can be very soothing that places no added stress on your affected problem areas. I assume you are already using a Heating Pad? If not, do so. Heat, within reason, can help you feel more relaxed albeit on a temporary basis.
Depending on the relationship you have with whoever your primary MD is, go in to speak with him/her about how the CIDP is making you feel and say you really need help NOW.
If this isn’t something you can do, head to the nearest ER or a larger hospital facility and ask for help. If nothing else the facility should be able to give you name/names of Pain Mgmt or Mental Health providers local to where you are. Your pain medication, whatever that currently involves, doesn’t appear to be helping much now. Rather than mixing and matching yourself, you need MD level assistance in directing you accordingly.
Not speaking to anyone about how your currently feel is Not An Option.
You DO need to talk it out with someone who is qualified professionally to help.
If you can’t speak to a family member, a friend or your prescribing MD as to how you really are right now and if you don’t know of any qualified Mental Health provider in your area, call the nearest Mental Health facility and ask for names and phone numbers of MDs that see/admit patients there with Chronic Pain/Depression. At least with a name or three you would have a starting point.
All else fails or if you are simply Not Able to Handle the matter at all, get yourself to the nearest ER in whatever manner it takes to do so for Help. Personnel there can likely provide you with names of appropriate providers in your local community. And yes, you have to ID the need to obtain Mental Health services too.
If you can’t get yourself there, call a friend, call a taxi or worst case, call 911 and be clear as to what the issue is so that you can be directed accordingly.
As hard as things are right now, there IS help available. Call your primary MD or whoever is prescribing medications for you and tell that person exactly how you are feeling then ASK FOR HELP.
This is a step that YOU Must Do.
Please DO THIS NOW. Don’t let another day or weekend go by without informing your provider(s) of care you Need Help Now and ask for direction as to where to go.
The Opioid issue in the USA is serious. DO NOT try to mix and match whatever Narcotic analgesic meds you may have at hand because you don’t know what else to do.
Effectiveness of pain medication can wear off over time. All that means is it may be time for a medication Change, NOT necessarily an addition to whatever you may already be taking that may not be working as well for you.
PLEASE REACH OUT FOR HELP, sooner rather than later.
Keeping you in my thoughts,