I have only been diagnosed a week ago but have been ill over the last 6 years.
It all started with what feels like flu starting e.g. aching muscles, stabbing pains all over my body, extreme fatigue and anxiety attacks. I would be doing something one minute ansat on the floor the next!
After visiting the G.P. I was told I was suffering from extreme mental and physical exhaustion, which I believed as I had 4young children and worked as a lecturer which on times can be a very stressful job.
I was off work for around 6 months, but never got back to how I used to be.
In 2008 I was involved in a car accident in which I hurt my lower back and was referred to a neurologist.
Then followed x2 mri scans that showed, severe swelling and damage to the nerve root in my lower back. the report read "possible CIDP".
Before Christmas 2011 I was walking with the aid of a stick and was in extreme pain but this was due to the pain in my back and legs not my feet as most sufferers of CIDP have.
I was then referred to another neurologist who said he wasn't convinced I had CIDP but sent me for a lumber puncture and nerve conduction tests.
These showed protein in the spinal fluid and slowing nerve reactions, all this points to CIDP. I have now been diagnosed.
However, after joining this group and reading most of the stories on here I'm not sure I have all the same symptoms and I'm worried that I've been misdiagnosed.
Most of my pain is in my lower back and down my legs, but not really in my feet apart from some stabbing pains which come and go. I have odd sensations in various parts of my body, like pins and needles, numbness in my hands ocasionally, I am becoming a bit clumbsy,extreme muscle ache and fatigue. I also have severe trigeminal neuralgia. My concentration is becoming poor and I have blurred vision which comes and goes.
Is there anyone out there that has CIDP and suffers the same symptons as me please? I would be very grateful for some help.