I have been having skipped heart beats, feeling like my heart was going crazy for a yr or more with a lot of dizziness. I tell ppl all the time I feel like i am going to pass out. When I went into the day hospital over three weeks ago to have what will be my last IVIG treatment due to side effects and what appears to be lessened benefits, I told them and all they did was an a ECG which showed nothing, duh. These things come on me five or more times a day, last 1-5 secs and have lasted longer a few times.
At my insistence my neuro sent me to a cardiologist this past Monday (1/30)who put me on a 48 hr holter monitor. Turned it in at lunch on Thurs, got an immed call fr the Dr telling me to come to the hosp immed to be admitted into the CCU. I have a potentially fatal vtac arrythmia. That was Thurs. they put me on beta blockers which stopped them. First a heart cath which ruled out blockages and heart disease. Then they tried to induce electrical probs with meds, speeding up the heart. I was scratching my head, asking them “isn’t this like giving me a great allergy med then handing me a flower and expecting me to sneeze? I have the beta blocker in me”. Durr. They did that test, small reaction, stopped the blocker then the next morn put me on the tred mill for a stress test, less than 24 hrs off beta blocker, and induced smallish amts of bad arrythmias. SOOO, now this is day two with no bb med and they want me to turn flips in hall and Monday all electrical tests will be redone.
I INSISTED they bring my CIPD neuro in who is doing some research this weekend. The situation is if they can find a bad place on my heart that is on the right side they can go in and do an ablation (burn off/remove) the bad place fr my heart. On the left side, no. They will implant a defibulator and pacemaker combo device. If they do this I cannot have any more MRIs. I am a breast can survivor who lost both breasts to can and I have a brain tumor.
I need MRIs. I can find issues with autonomic system, (heart rhythm, blood pressure, diaphragm, body temp) with GBS. How’s about CIDP? I need help. Tomorrow is the day. I need info to point them to if none has been found by my neuro, from reputable sources. You know, medical sites. Thanks so much. I just feel this could be related, also what could be misconstrued to be hot flashes. I have those but had a total hysterectomy in 2002 and do not take hormones due to the breast can found 13 mos later so I do not see how these are hot flashes. When the autonomic system is affected that is as well.