I know I am not the only one that has this problem with GBS. My face stopped moving almost 3 or four weeks ago. the left side of my face is coming back more than my right side as of right now. every day I notice that I can move the right side a little more each day but not a lot more each day. I just want to know if anybody had this problem when they had GBS or they do have this problem right now. I want to know how people dealt with it and how long it took them for their muscles in there face to return. it would be so nice to hear all the different stories and get information because I am so scared that I wont be able to play music again because I have missed out on a lot of stuff with band and it is so hard! thank you so much for reading this and I hope I can hear from a lot of you guys :) <3
it is so crazy to know that GBS and CIDP can do such things to one person. before I had this I didn't even know there was such a thing! I will keep you and everyone else in my prayers because I know I appreciated everyone from my home town praying for me so I want to give that back to other people that had or have the same thing I did.
Hi, I can kind of relate to your problem. I was first diagnosed with GBS back in 2003, then in 2006 I was re-diagnosed CIDP after have relapses, (go to my page and read my story). Usually GBS or CIDP are symmetrical, but for some reason back in 2008 I had a bad relapse and it went A-symmetrical and effected just the right side of my upper extremities and face. At first the ER thought I was having a stroke but then that was ruled out and they claim it was just a bad relapse. I still have some degree of numbness in my face today but not like I did when it first hit me in 2008. I play guitar and have found it very difficult to play now due to the numbness in my hands, so I know how you feel about not being able to play music again. I still try and play but not the way I use to be able to play. This disease changes your life.
I have to get IVIG every three weeks for the rest of my life now if I want to keep walking.
Good Luck, ""Stay Strong and keep a Positive Attitude""