I GET 240 grams of IgG , twice a month, in six separate and very long infusions (6-7 hours each). TO say my life is ruled by IgG and the infusions is an understatement. I've been pounding the CIDP diagnoses for about twenty months. I have very few side effects because I read... read... read, and I demand that my stabbers and infusers and neurologist do what I ask of them. I try to take control.
I have many of the relapsing problems with weakness, etc,. that others have on this site. I've learned to separate my diabetes from my CIDP. I've learned that CIDP is only one thing: a failure of muscle that move the body's muscle-skeptical (lol) system, bugger-up the anatomical nerve system muscles, disrupt sensory response to muscle systems/tracts and goober-up the mysterious entrnic nerve system's muscles... in other words, muscles defeated. In the mush-mash of CIDP and myelin's defeat, the sensory systems scream out, but mainly we are dealing with lower motor neurons in distress and defeat in the spine.
For 12, maybe 15 years I explained to the Kaiser that two or more diseases were slowly ravaging my body. Nada and nothing and 10 neurologist no-nos in those years... the pay is lousy for neuro boys and gals in Maui, cost of living is presided over by hospitality industry vampires.
I did suffer one side-effect from the Kaiser though... I was arrested and thrown in jail for muttering, before my Jan. 31, 2013 infusion, "my bag is so heavy, it feels like it's full of bombs". A neophyte office worker heard, "... full of bombs...".
Jailed on a felony, dutifully appearing at three court appearances, paying big money for lawyerboy, six months probation... and of last week, all these side effects became a thing of the past.... I hope. The Kaiser can still press me for the cost of the hospital evacuation and the Maui police can bill me for their involvement in that day of mock infamy. Hundreds of thousands of dollars....
To say that CIDP is a treatable disease may be a happy statistic for many, but once big money enters the equation, the equivocation on the part of insurers increases exponentially.