I have been suffering from what the Dr.'s call a rare form of CIDP. In late Aug after multiple tests they started me on IVIG. The first several months I did not notice life altering changes. But slowly I started moving better, feeling again, being able to walk up 4 stairs with out holding on to rails and pull. I was receiving my regular IVIG every 3 weeks and doing good. Then my insurance changed. The say IVIG is not medically necessary for me. It has been several months and I am noticing all the regular stuff coming back, but this time I have more pain. The have increased my immunosupressants and prednisone but it does not seem to work the same or as quickly.
Do you guys have any suggestions, have you tried any holistic avenues?