I am not personally effected by CIDP, but my dad is. I am struggling to understand how I can provide support, emotionally or otherwise. He is very quiet and does not articulate what he’s feeling/thinking/struggling with, but I know it’s not because they are not there - it is just being internalized.
I guess in short I’m wondering what you wish people knew, or what has been most meaningful in terms of support. I imagine it’s something that can only be impacted so much by external factors/other people, but I’d like to think every little bit helps. I certainly do not want him to feel like he’s alone in this.
Is it helpful to have someone encourage you to engage in more activities? Or better to have someone who stops trying to do that and understands that staying at home is all you can do? Do you like to talk about it or do you appreciate when someone just sits in silence with you when you’re having a difficult day? Is there anything else that you really appreciate or really detest from others?
I understand everyone is different, but I feel ignorant as an outsider and don’t want to be insensitive or negligent when trying to help. Appreciate any insight you’re willing to give.