Good to hear from you! What a long road you have been on too! I was pretty choked up about John's response, then comes this one. Those are hard words to hear, for an old softie like me, but how else am I to learn, but through all of you.
So 45 years, oh my! I have the deepest respect and admiration for all of you, that is just too long!
I had to look this up, so will post it for others who may also be unfamiliar with it.
Potassium and salt, how could something so basic cause such havoc in the body? I asked the same about Lyme disease, how can such a tiny little bug like a tick make a person so desperately ill?
My illnesses are all hereditary too, without offending anyone about their religous convictions, hopefully stem cell research will change the dynamics of these diseases. I am not a medical professional, but one of my friends who is, tells me that they are learning that many of these genes have 'off and on switches', they just don't yet know how to flip them! YET!
My Rheumatologist not only practices, but is an asst prof of clinical studies, so he is one trying to figure these things out! He diagnosed me just by looking at my fingernails! They have always been 'pitted', they seemed normal to me, but were the defining moment.
I wish you the best in all of this, if ever you, any of you want someone to talk to I'm around!
Thank you for responding, Jayme, it means a lot to me. Hope opening day ended better than it started.
Wishing you well,