Sorry to respond s late. I was taking a break with family.
Diagnosis on basis of symptoms alone.
I had been having nerve pain [ over 3 mo, that I thought was plantar fascitis] then I developed foot drop on left, later on right over 6 weeks and then acutely [ in 2 days] lost ability to balance and got admitted for gbs and ivig. I am showing improvement: able to walk short distance without walker. Fatigue/ lack of endurance is my biggest prob and newly developed hand muscle weakness[ can’t lift heavy things and need to rest my hand after use]
My neurologist said that my emg/ mcv was normal except for the one nerve and toe extensors paralysis.
My symptom progression[ slow over 6 weeks] is like CIDP but since my emg / mcv is normal it is GBS. It may be normal since demyelination was proximal per neurologist but improvement post ivig is the main reason for my GBS diagnosis.
I read your story, it must have been hard. I hope you are doing better.