I enjoyed your blog and laughed out loud several times regarding moments I had myself (‘am I crazy?’). Thank you for that, it was really nice to relate to someone. It’s been a long journey for me as well. Several years, ER visits, specialist visits, and my husband believing he married a full on hypochondriac. Apparently, he didn’t. I was diagnosed at Mayo Clinic in Rochester, MN on my birthday this last September. I had been going to Mayo for a year. It was my third visit and so I went alone. I had been diagnosed with small fiber neuropathy, voltage gated potassium channel antibody syndrome, cervical dystonia, and chronic migraines. We tried an experimental round of IVIG and Rituxin this past summer (14 week protocol) and it changed my world for the better until they stopped treatment in August. Then, life went back to Hell in a handbasket, so to speak. I didn’t realize I would be blessed with a diagnosis, but I was. I was both thrilled and terrified. Thrilled that I had something that had a real name and some recognizable treatment and terrified that there is no definitive outcome. I have two children, a daughter and son, ages seven and four, respectively. At times, I can’t even fix my daughter’s hair or feel her hand in mine. Life has changed. At least my perspective of it has in so many ways. I’m rather tenacious and proactive so I have hurt myself several times attempting to get better. I’ve learned to slow down. Physical therapy twice a week has been incredibly helpful and validating. I recommend it to everyone. I have a team that I work with at the med center. If you are like me, being active is the last thing on your mind because you’re thoughts are crowded with pain, crazy sensations all over your body, trying to make your limbs cooperate, and trying to be normal. But, PT and lots of other drugs have gotten me back on my feet. Also, I can walk a little more like a lady now that I can comprehend where my feet are in relation to my body. Lol! Welcome! I’m a newbie too.