Normal EMG after 20 months of IVIG

I have been getting IVIG for 20 months now every 3 weeks and I have had another EMG done this week by another doctor that thinks I don;t have CIDP because this new Doctor did a new EMG and said it was pretty normal. My question is can my EMG improve because of the IVIG I have been getting? Has anyone else had this happen? Thank you

Now I am not for sure on anything these days but my doctor did an emg after I got my loading dose and he stated it had improved some. It was about 2 weeks between the times. I also feel that after I took my second month of IVIG I could feel sensations more, So I personally feel it would not be unlikely that you show pretty normal EMG after 20 months of IVIG isn't it suppose to treat it??. Mind you I am new and maybe totally off base. From my understanding there are even people who go into a remission state and later have episode sometimes years apart. Or you may see that when stopping IVIG at some point you start feeling worse again. Just as some people need IVIG more often to maintain improvement and others less often, CIDP is very personal in the sense each of us is different. Hope this helped, if not sorry as I said I am new to CIDP. BEst of Luck, God Bless..



txangel922 said:

Now I am not for sure on anything these days but my doctor did an emg after I got my loading dose and he stated it had improved some. It was about 2 weeks between the times. I also feel that after I took my second month of IVIG I could feel sensations more, So I personally feel it would not be unlikely that you show pretty normal EMG after 20 months of IVIG isn't it suppose to treat it??. Mind you I am new and maybe totally off base. From my understanding there are even people who go into a remission state and later have episode sometimes years apart. Or you may see that when stopping IVIG at some point you start feeling worse again. Just as some people need IVIG more often to maintain improvement and others less often, CIDP is very personal in the sense each of us is different. Hope this helped, if not sorry as I said I am new to CIDP. BEst of Luck, God Bless..

Thank you Txangel922

I don't even know if I am replying to your post or writing a new post! Lol I was diagnosed 2 years ago but I have just recently joined the support group. I have read the same things that you have read in the past. I thought the ivig was supposed to make me better and that I might even go into remission. I finally broke down and went to a pain care specialist who did another emg on my legs, feet, back, neck, and arms. Nothing like a couple of days of being tortured! He said my neurologist was wrong and I defiantly don't have CIDP?!?!? I told him I would be happy to not have CIDP but what is causing all my problems then. He said he thinks it is all coming from my past neck surgery,and compression fractures in my back. I told him that would still not cover all my symptoms including muscle spasms all over my body and he responded saying "sure it would" I mentioned the fatigue I have and he said well everyone gets tired..... So now I feel like I am being whirled around in a blender not know what is really going on. I am supposed to go back to him in 2 weeks to get the printed results which I guess I will take to my neurologist and see what he says. Thanks again, Good Luck to you and God bless you too!

I would definitely get with my neurologist . No offense to a Pain specialist but your neurologist might know more or understand the nerves better should I say. To often some doctors get dismissive of things and don't take in all the data. They see the blaring indicators (the neck surgery and the compression) but don't take into account the smaller things like your IVIG should actually make it to where the demyelinating stops or slows and allows your nerves to repair over time (well what can be repaired that is) thus showing better EMG results. Always remember what one doctor thinks is not the end all of the discussion. If you don't agree and feel they are missing something or dismissing things, then seek a second opinion. No harm done double checking but lots of harm could be done if your illness is not treated correctly.