The Neuro I saw was from the hospital and he told me today I had a small stroke I had the TIA's from that....he told me it was on my right side, which I didn't know that....I still am doing ok....because the Pylax is working...no more so far (lucky stars I hope is watching over me) TIA's since I started on this med...keeping fingers cross again...I feel too young but you read people who were just children having a stroke...they aren't fun...I am still talking funny...and still have some numbness on my left side of my face...walking about the same with my drop foot...a lot of weakness on my complete left side right now...a little on the right...but it was a tiny stroke in size....I am praying for thankfullness it could of been worse... I feel very tired a lot. pain yessssssss lots of cramping so bad on some days I cry out loud. I wish I could go to a pain spiecialist....I have apt in the morning with my PCP...I will again ask....
OK I too try both Lyrica and gabapentin which were started much to high of doze! I did go temp. blind with the gabapentin...really I couldn't see without turning my head weird to look thru the bottom of my eye. Anyway my husband has been bagering for me to try Lyrica again...so I am right now...just the lowest doze they have...and
they are making me feel very tired too......Do you get horrible headaches Susie? I wake up with them, and sometimes during the late afternoon I get them so bad. So this new Neuro doctor I saw just writen me up a Rx I haven't pick it up....one thing I think might be good....he told me it also makes you loose weight....which I could really use....hey I think if they dont' work for my headaches the inches I might loose will make up....what you think? lol
As for all the pain you have so it sounds like everywhere on you....down each arm, down each leg...I don't know what to say....except whatever you are using God Please give them to me too!!! smile.
I live on Hydroconde 7.5mg....and now my husband talking me back into Lyrica I hope it all works...Yes the doctor today said those two med's you said are what they use for neuropathy....so what I am happy you have a sept doctor what a great idea!!!! I go in tomorrow see my PcP and I am again going to plead with him to send me to pain speicialest....I know that the shots I had two years ago in my lower back has help me until recenly when they wore off. I had two epdurals. Anyway, they said I could have 3.....but two did it for me. I wish for more right now.
OK YOU sound so badly in need for help...I wish I knew but as you can see I am almost same boat looking for the answers. I know that the doctors you will see by all the things I have heard, that you will be in one of the best hands here in AZ. They speicalize in neuropathy.....and so they should help you....I am working on getting there soon.
And I can't wait for the "name" of what it is I have....today the Neuro I saw told me also that (sorry I just went blank) ok I remember now....that all the tests and they tested for MS...and my brain didn't show it....so he said I didn't have MS....but there are a lot of dieases that look like each other....so I am hanging in there// Hope you are too susie...keep hanging girl...
What a bummer living so close to a great place such as MayO clinic....what a shame....I don't understand why some insurances they take and others...I guess it's the almighty dollar.....always seems to be. Iam also sorry for that.
I have medicare because of my copd....and it just started the medical part this June...so everything I had went away and now I have what I have with my medicare hook on....that is why I had to start over with those doctors...O me O my I live like a frog so I hop around waiting for one thing or another to drop on me with my forever hung up body....isn't life like that....we always waiting for something around the corner....it's suppose to be "better"....mean while we surfer with pain...and not knowing what it really is. I might as well be the frog and jump on home...I guess.
So now they say I can change to a better polcy etc...when I turn 65.....funny huh..... I stay where I am with the United Health Care Plan....and hope that it will be true next year something better then now...
I do hope all your pain will be something of the pass....and you will know for sure if it is CIDP....or??????
it quaks like a duck, and walks like a duck....it must be a duck!!!!!! that is how I feel right now with all the possiblities!
NO this doctor Neuro doctor nice as he is can only treat me with his bag with what you already and I have already taken....it's on ward
Yup I live out here in Queen Creek......love it here....Scottsdale is nice, busy there, were slower pace....lots of things are a like in both places....like horses...etc. You have more doctors I beleive.....were not that grown up still country here. smile
Good luck tomorrow with your neuro visit! I hope this visit get you closer to a diagnosis that makes sense. As far as pain meds go, I see a separate pain doctor and then just let all my other doctors know of any changes with meds. I have a tremendous amount of pain with these neuro problems. My journey has involved a lot of pain shooting down all of my limbs. The pain started with the pain just shooting down my legs and within a short period of time the pain was affecting my arms too. I liked having a separate pain doc because I have moved from doctor to doctor so many times trying to get answers. He has been the one doc I have stuck with through everything. Lyrica and gabapentin didn't work for me so I take opiates and muscle relaxers as needed. I don't have as many shooting pains now as I did last year, but the pain is constant. These days it doesn't take much for the pain to become pretty intense. Day by day I am getting weaker and the pain is increasing too.
Don't even get me started with insurance issues. That has been a great source of frustration for me too. My insurance won't cover Mayo at all and the Mayo Hospital is just a few miles from my house. I had emergency surgery there in 2005 and it was the best hospital experience I have ever had! We do have to be patient for sure. That is a big character flaw that I am working on because patience doesn't come easily to me. Everything takes so long with the medical community. It generally takes a long time to have records transferred, getting tests scheduled, long waits to get appointments and then a long wait in the waiting once you get there.
Please keep me updated about your doctor's appointment. I'll say a prayer for you tonight!