Polycythemia

Does anyone know of a link between polycythemia and CIPD I was diagnosed with polycythemia after my symptoms began but before the CIDP diagnosis .

i don't know of a link, but i have been diagnosed with polycythemia this past sept. had symptoms when looking into diagnoses of CIDP since 2011.

Is your polycythemia ongoing? I was having to have blood drained every 2 weeks for quite some time. I never found out what was causing it. It occurred in succession with each of my organs trying to shut down. I hope yours has improved.

I HAD A PHLEBOTOMY EVERY WEEK X 3 UNTIL MY HEMATOCRIT STABILIZED TO 0.45 OR LESS (VALUES MAY BE DIFFERENT IN THE US). NOW I HAVE A CBC DONE EVERY MONTH TO CHECK MY LEVELS. IF ELEVATED ANOTHER PHLEBOTOMY. MY DR. (HEMATOLOGIST) CHECKED MY BLOOD WORK A COUPLE OF YEARS AGO FOR CAUSE, APPARENTLY 95% OF PEOPLE WITH POLYCYTHEMIA HAVE A "JACK 2" MUTATION. I DID NOT. SO WE LEFT IT ALONE WITHOUT DIAGNOSES, PUTTING THE CHANGE IN HEMAGLOBIN AND HEMATOCRIT TO "INFLAMMATION". WHEN HEMAGLOBIN ROSE TO OVER 190, WE DECIDED TO DO A BONE MARROW FOR DEFINITIVE DIAGNOSIS. AND VIOLA', I HAVE POLYCYTHEMIA DIRECT FROM THE BONE MARROW. SHE IS NOT AWARE OF A CO-RELATION WITH CIDP AND NEITHER IS MY CIDP SPECIALIST........BUT.....

PS I ALSO HAVE MGUS {IGg}, YOU? I HAVE NOT EXPERIENCED ANY TYPE OF "ORGANS SHUTTING DOWN"