I was diagnosed with CIDP at the beginning of September after a few months of increasing symptoms. Luckily I saw a doctor with a lot of background with GBS/CIDP and got an immediate diagnosis after only a few weeks. I was immediately prescribed a monthly dose of IVIG and 3x week physical therapy.
For the moment, it seems like the symptoms have stopped getting worse, but I can't say for sure that they've gotten better; I still walk with a cane (albiet a cool one - replica of the one from Dr. House), and numbness and tingling remain with a serious amount of muscle atrophy. I'm unable to lift my feet (dropfoot) and after a few blocks of walking my muscles become very weak.
I was wondering what people's experience has been with IVIG treatment in terms of how fast they responded. The only scientific papers I've read on the subject measure responsiveness to CIDP in the hands, not the feet/legs. I feel like if I had CIDP in my hands I would have noticed the numbness and atrophy much earlier and wouldn't have passed it off as simple muscle weakness for as long as I did.
So... who's primary treatment method has been IVIG, and how fast (if at all) did you respond? Did adding other types of drugs, such as immuno-suppressants, make things better or worse?