Havent posted for a while. Just reading comments re wife having fever reaction and am interested in other peoples comments about best reaction from slow infusion.
I see today I have been going for 4 years .. surprise to me.. and although I have deteriorated I seem to be a lot better and more active than some similar patients at the hospital who went on the treatment about the same time as me .I get a large dose of Intragram monthly infused at 240 as I do not seem to have any adverse reaction to the fast intake (still 4 to 5 hours). They tell me to take it easy after treatment but I am a bit of a nutter and get back into physical activity straight away on the theory that I want to get all the "stuff" swishing around my body and blood stream before I "pee" a lot of it away. ( any comments)
I am 77 and should expect to feel old, However it disappoints me that I frequently lack "zip"". I wonder sometimes whether I should take some "well being "supplement"(any comments) but I guess the "slow-go is a by-product of the disease .I am still gardening , walking, fishing ( when I don't trip over) and such like but my latest disappointment is pain and weakness in the wrists which is a real "bummer"". I am also battling with my legs getting weaker and have trouble negotiating ramps , getting out of low chairs ( suchlike) now accentuated with the sore wrists . Ankle are stiff and sore.
This is not a bellyache post. lol In fact I thank GOD each day for my good health ( compared to others) I just find it interesting reading other peoples posts (searching for useful info) . That is why I was really interested in "slow infusion"" giving the body a better chance of processing the "goodies"" and wondered if my fast theory followed by increased activity quickening the heat rate is good or bad . ( any comments) Kind Regards OZIURN