My name is Kristina and I'm a features writer for women's magazines in the UK.
I'm really interested in CMT and the experiences that people have had with it. I was wondering if any young women from the UK (or Mum's of little ones in the UK) would be interested in talking to me about it and possibly appearing in a magazine?
I hope I don't offend anyone by posting here, but you all seem like such inspirational people that I think it would be really great to spread the word. It would also be another great way for you to support others.
I have been working with another of the Ben's Friends Groups (for AVM survivors) and have found the experience really informative and learnt a lot about the condition - I'd love to be able to do the same here.
Let me know what you think! x