I know this may sound like i should be posting his disscussion on a web site
That for relationships but please hear me out. As you know I have started a friendship / relationship,
I’m finding it really difficult to understand what he is going through,
at first he explained a little about CMT to me, and how it all
Started, at the start of our relationship, he wanted to see me
all the time, we see each other about once a week now.
He makes up all excuses Not to see me or answer my text messages
that I send Him, I don’t speak to him for days, then suddenly I get a
Message that tells me he has been bad, his head had been
Hurting real bad, his back hurts and he has had to have a long soak
In the bath to make him feel a little better, i have always got to ask to go and see him,
he never invites me Round and before i go he will say be warned i am a wreck,
but when i do go round, he looks No different He’s as lovely as ever. Is this how people feel
With CMT? is there someone who can explain to me what it feels like
And what he is going through, how does he feel? When we first started
This relationship we were just work colleagues and although he was open
About CMT nobody asked him anything about it, I don’t think he planned to start a relationship
with anybody because he says He has always had his way of dealing with it ( he sits at his desk very quiet)
and keeps himself to himself or is he finding it hard to let someone back in his life ( he has been married they split when he was diagonsed
With CMT and he has 2 children) I am Not sure wether he wants anyone in a relationship with him, because he wants to deal with
whatever he can By himself. He dosnt seem to let me in, if that’s the word to use, do I not contact him ? And just wait for him
to contact Me at his own pace? He did say he has never let anyone in before. Is there anybody who can help me please. I do hope I haven’t
Waffled on too much.
Hi and welcome! I have CMT,and I am also in the dating field. I am not sure what drugs your partner is on,but the usual protocol is tiring. Speaking for myself,I have some level of pain always,but try to manage that as best as possible. With a low energy level,it becomes hard to be energetic. I try to be positive as much as possible and the man I am dating is very understanding,but he pushes me to keep going!!! I can't speak for the man you are dating,but fatigue and pain can make dating seem like just one more thing to do. Not right,and no reflection upon you. Perhaps he is afraid you will leave,as his wife did. This happened to me,too. My husband left after my diagnosis. I guess a good open discussion between the two of you about CMT and how it is affecting both of you would be a suggestion. Good luck,be patient! We don't always look as bad as we feel inside.
Karen
Thank you very much for your advice, it is a great hep
A good long chat about CMT does seem to be the
Way forward, thank you
Karen said:
Hi and welcome! I have CMT,and I am also in the dating field. I am not sure what drugs your partner is on,but the usual protocol is tiring. Speaking for myself,I have some level of pain always,but try to manage that as best as possible. With a low energy level,it becomes hard to be energetic. I try to be positive as much as possible and the man I am dating is very understanding,but he pushes me to keep going!!! I can’t speak for the man you are dating,but fatigue and pain can make dating seem like just one more thing to do. Not right,and no reflection upon you. Perhaps he is afraid you will leave,as his wife did. This happened to me,too. My husband left after my diagnosis. I guess a good open discussion between the two of you about CMT and how it is affecting both of you would be a suggestion. Good luck,be patient! We don’t always look as bad as we feel inside.