Hi there, Just a general question. I have been experiencing major swelling in my legs, feet and hands over the last 4 to 5 weeks. I dont think I am in active flare up, in fact I am in my second week of Prednisone treatment while waiting to hear back on the approval or denial for IVIG. the swelling makes the pain I am already experiencing so much worse but I cant seem to find relief. We have tried compression socks and gloves. Soaking them in warm salt water then cool compression afterwards. Elevation etc. When I talk to my Neurologist about it he doesn't seem too concerned then yesterday I went to my PCP and he is concerned but doesn't know anything about CIDP and was concerned about making things worse.
I am on a mild diuretic I have high blood pressure, but with the mediation I am on the BP is perfect and increasing the diuretic would possible make my BP too low and cause other problems. I have a Physical therapist and Clinical Occupational Therapist visiting me weekly so I am becoming more mobile bit for 4 weeks mt mobility was just from bed to chair to restroom and back.
Is swelling something others experience? Any recommendations? I keep worrying the swelling could be something else :(