What is Living with Polyneuropathy?
Living with Polyneuropathy is a dedicated patient-to-patient support community for families affected by Polyneuropathy. Polyneuropathy Patients Support Community is powered by BensFriends.org, a network of patient support communities for rare diseases, and is run by volunteer moderators who have been affected with Polyneuropathy condition.
Who can join Living with Polyneuropathy?
If your family has been affected by Polyneuropathy, consider Living with Polyneuropathy your second home. Living with Polyneuropathy, as well as the rest of BensFriends.org’s patient communities, is free for members to join.
What is Polyneuropathy?
Polyneuropathy is damage or disease affecting peripheral nerves) in roughly the same areas on both sides of the body, featuring weakness, numbness, pins and needles, and burning pain. It usually begins in the hands and feet and may progress to the arms and legs; and sometimes to other parts of the body where it may affect the autonomic nervous system.
It may be acute (appearing suddenly, progressing rapidly and resolving slowly) or chronic (emerging and developing gradually). A number of different disorders may cause polyneuropathy, including Guillain-Barré Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy(CIDP) and Charcot-Marie-Tooth (CMT) which are predominantly motor peripheral neuropathies. Although poly-neuropathy is common, it most often is the result of “something else”. Guillain-Barré Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), and Charcot-Marie-Tooth (CMT) are known disease are either hereditary or autoimmune in nature and are “rare”.
What is BensFriends.org?
In 2007, Ben Muñoz suffered a rare form of stroke caused by an AVM. He was unable to find the support he needed during the most difficult time, so he created an online support community AVMSurvivors.org to connect with others like him. AVMSurvivors.org led to the founding of BensFriends.org, driven to provide patient-to-patient support communities for people living with rare diseases.
BensFriends.org is a network of patient communities for people living with rare diseases. Launched in November 2007, BensFriends.org provides valuable patient support by creating and running compassionate, responsive communities. BensFriends.org maintains dozens of patient communities and has changed thousands of lives.
You can learn more about BensFriends.org at http://www.bensfriends.org or watch one of our videos at http://www.youtube.com/BensFriendsVideos.