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Living with Polyneuropathy

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Author: livingwithpolyneuropathy_0m2ghz

Hello world!

July 24, 2023July 24, 2023 livingwithpolyneuropathy_0m2ghz 1 Comment

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Recommended Reading

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  • See How Ben's Friends Changes Lives + Double Your Impact
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  • See How Our Community is Changing Lives

Ben's Friends Sites and Social Media

List of Ben's Friends Patient Communities
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Blogs

  • Helpful Information about Primary Sclerosing Cholangitis
    Primary Sclerosing Cholangitis (PSC) is a rare and chronic disease that is characterized by inflammation and scarring within the bile The post Helpful Information about Primary Sclerosing Cholangitis appeared first on News From Ben's Friends.
  • Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients
    Hypermobile Ehlers-Danlos syndrome (hEDS) is a rare disorder caused by genetic mutations affecting collagen, a crucial connective tissue protein. It The post Best Ways To Interact with Hypermobile Ehlers-Danlos Syndrome Patients appeared first on News From Ben's Friends.
  • Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families
    Spinocerebellar Ataxia (SCA) is an inherited disorder that primarily affects the cerebellum, the part of the brain responsible for coordination The post Your Guide to Understanding the Progressive Impact of Spinocerebellar Ataxia on Patients and Families appeared first on News From Ben's Friends.
  • Know your family history: Unmasking Von Willebrand Disease’s Pervasive Impact 
    Executive Summary Von Willebrand Disease (VWD) is a lifelong bleeding disorder that poses both physical and social challenges. For instance, The post Know your family history: Unmasking Von Willebrand Disease’s Pervasive Impact  appeared first on News From Ben's Friends.
  • Complex Regional Pain Syndrome: A Burdensome Journey of Relentless Pain
    For some people, taking a shower, feeling the wind on their skin, or their clothes brushing their legs can bring The post Complex Regional Pain Syndrome: A Burdensome Journey of Relentless Pain appeared first on News From Ben's Friends.

Testimonials

It's been helpful to hear others' stories of symptoms, diagnoses (which are not easily come by), and treatments. I only just joined a few weeks ago and haven't yet posted much, but the welcome I received from at least two people was genuine and kind and most encouraging. This support group is essential and fills a sorely missing spot in the online community spectrum!

--- Elsa, CIDP

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...I learned so much along the way and have become stronger in my understanding of GBS throughout my recovery. It's helped me turn the negative of GBS into a positive by being helped, helping others and making friends with those on a similar road. Ben's Friends has helped me heal by helping me find all of those 1 in 100,000s in the world and for that I am so appreciative!

--- Tarhealing, GBS

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Ben created this wonderful site. His Twitter feed is filled with many stories of hope over great challenges.

Sharyn

Ben’s Friends continues to expand this gift of love and support by creating more communities for folks sharing different great health challenges. Ben’s growing patient support sites continue to provide support with its members while new members share the challenges and share the joys. Thanks to Ben, Shalon and all the others who manage this site. It is a gift that keeps on giving.

--- Sharyn

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Your website then was my biggest support.

Pat

We met back in 2006, in Austin at St.Davids. I and my daughter, Britanny, who was then 16 years old were new to the site. Your website then was my biggest support and we came to know that so many others are struggling through very similar issues. Today Brittany is 21 and married almost a year ago. Britanny now lives here in Austin and had gone for a year in San Diego. After her gamma knife operation, we had to wait the two long years. I am so proud of YOU!!! You are such a wonderful example of turning the hurts and pains of this life into positive! May you be ever so BLESSED!!!

--- Pat

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